*For open access link to the full article click here. Roughly one in 10 Americans are affected by a rare disease. That number further compounds when accounting for the individual rare features that can present in a single disease, thus making an even more sizable impact on the overall population in the US. Living with… Read more »
Publication
Social media use by patients with hypermobile EDS
*For open access link to the full article click here Every 6.4 seconds a new social media account is created. Since the rise of social media in the early 2000s, access to connection online has multiplied tenfold. On the average day, we spend about 2 and a half hours scrolling through social media. And this number… Read more »
Dangerous Ignorance: What Patients Don’t Understand about Pharmacogenomics
Do you know what pharmacogenomics is? You might not, but you should, and all patients should. Pharmacogenomics (pronounced pharma-co-genomics), which we’ll abbreviate PGx, may well be the first type of genetic testing you will get. PGx checks for genes that interfere with the body’s response to certain medications, either reducing their effectiveness or increasing side… Read more »